Annual Cardiology Check-Up

Yesterday was Matthew’s annual cardiology check-up.  Height: 2’7″   Weight: 23 pounds.

The first thing Dr. Anderson said when he walked in the room was, “How is Miracle Matthew?”  I really appreciate that he always remembers, and comments on Matthew’s miraculous healing.

Matthew cooperated very well for the echocardiogram – he just relaxed, sipped on a bottle, and watched the “Baby Einstein” video up on the screen.  ( … not my favorite video series, but that’s a topic for another time!)

During the echo, the technition said, “So this is Matthew!  His name has been brought up at many a cardiology conference.  I looked back in his file – it’s really interesting to read the surgeon’s reports … he has had quite a journey, hasn’t he?”

It was a good reminder to Aaron and I that he really is a miracle, and that, at one time, his heart really was that bad.  Sometimes our journey seems like a bad dream … the memories a little foggy over time (or maybe we were just living in a constant foggy state?  That could be true, too.)  Living with Matthew every day, we often see him as “Matthew the Menace: a force of destruction like you’ve never seen,” and forget that it’s a true miracle that he is able to be a menace at all.  Cardiology appointments are good reminders that he is Matthew the Miracle:  a gift from God.

The test results?  His heart still looks good – the patches are doing well, and there are no adhesions (extra tissue bands) around the valves, which can sometimes form after surgery.  His mitral regurgitation (valve leakage) is “mild to moderate,” but not significantly worse than 1 year ago.   If the leakage causes the left side of his heart to become enlarged, he may need a valve replacement down the road.  For now, though, the left side of his heart looks just fine.  Considering that 2 1/2 years ago, we were told the left side of his heart was too small to support life, it seems ironic that now we’re worrying about it being too big.

There is nothing we can do about it, though – except to keep praying.  Matthew is in God’s hands, as he always has been. 

…and that’s all the heart news until next year!

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8 thoughts on “Annual Cardiology Check-Up

  1. Hooray! I was just going to jot you a note to see how the appt went! 🙂 Praise God–little Matthew is a walking, (almost) talking miracle FOR SURE! 🙂 Phew–yay to not have to worry about that again for another year. 🙂 Happy weekend!

  2. What a great report! I can’t believe that it has already been 2 1/2 years. We miss you dear friends and think of you often. Sending lots of hugs and sleepy dreams for the babes…

    xx Libby

  3. Pingback: Tonsils, Tubes, and Sleep Apnea « Matthew Nicholas Vawter

  4. I stumbled across your blog as I did a search for heart issues. Although I do not know what the intricacies of having a child with Down Syndrome are like, I can only relate to heart issues.
    I started crying as I read this post out loud to my husband. We are still in the ‘bad dream’ and living in a ‘fog’ stage. I believe in miracles… and that our little one is a miracle. But some days it’s hard to believe there might be a miraculous ending at the end of the tunnel.

    Until I read blogs like this. Thank you for sharing this inspiring report. I pray that Matthew will continue to have a long lifetime of surprising and miraculous reports. He is so adorable! What a blessing! God has great things in store for him!

    • Oh, wow. Your family really is in the thick of it right now. I’m glad my blog could give you some hope – that’s why I write. It seemed like when we were going through it all, I didn’t know anyone else who had walked a similar path, and I felt so very alone. If there is anything we can do for you, or if you just want to chat with someone that understands a little bit of it, I’m here. Thanks for reading our story, and thanks for taking the time to leave a comment. I will keep little Sophie in my prayers, and will check up on her through your blog, too.

      Amy

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