This and That

1.
Micah’s hearing is much improved.  Thank you all for the prayers!  It appears that the fluid behind his ear drums was the culprit, and now that it has started to drain, he can hear us again.  We will have his hearing officially tested just to make sure everything is o.k., but I can’t tell you [...]

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Prayers for Micah

Micah is having a lot of trouble hearing.  He can’t hear a normal speaking voice, and has even more trouble if there is background noise.  At first, I was very frustrated with him because I thought he was ignoring me every time I talked to him, but it became clear that he truly isn’t hearing.
His [...]

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World Down Syndrome Day

Today is World Down Syndrome Day.  The date, 3/21, represents 3 copies of the 21st chromosome.
It comes at a great time this year, in light of the President’s recent faux pas.  (By the way, the best response to this that I have seen is from Sarah, an expert bowler and an eloquent blogger, who just [...]

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A really nasty virus

. . . and not the computer kind.
My “mild cold” grew up into a big, nasty illness that has knocked out our entire family.  I had the worst sore throat and cough I can remember, and lost many night’s sleep either taking care of sick kids or coughing too much to sleep.  Matthew ended up [...]

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The Best News

Dear Matthew,
One year ago today was a very big day for all of us.  It was the day we found out that you were going to live.  It was quite a shock, since we had been told with such certainty that you would die very young.  And, we had a lot to prepare for, with [...]

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Snow House Pictures

Mommy’s been busy lately, so I thought I would share some pictures from our last trip to Bubbi and Papa’s Snow House.
I sure hope we can go back soon!
-Micah

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Prayers today

I received an email from Lisa a couple days ago.  Her little girl was diagnosed with Down syndrome and an AV canal defect in January, and her labor is being induced today.  Please keep them in your prayers today, as this little one is born, and pray that their journey to and through heart surgery [...]

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What about Trisomy 18, Trisomy 13, or other terminal diagnoses?

Although this blog speaks mostly to Trisomy 21, or Down syndrome, I do have a lot of empathy for parents who receive a diagnosis of Trisomy 18, Trisomy 13, or other terminal conditions.
When we first received Matthew’s diagnosis, the severity of his heart defects gave him a “Zero-percent chance of survival.”  I will never forget [...]

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Part of our Miracle that I Neglected to Share

It seems like I have come down with a mild cold.
Why is this news blog-worthy?  Well, you see . . . I have not been sick – not even a little bit – for over 2 years.  I haven’t even had the inkling of a cold since we received Matthew’s initial diagnosis when I was [...]

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Our Little Spitter

For the past week or so, Matthew has been spitting at meal time.  Not just fun, “I’m making noise” spitting, but real problematic spewing-food-and-milk-all-over-the-place spitting.
I knew we had a problem when I firmly told him, “no,” and was rewarded by a face-full of milk and that defiant look in his eye that parents know all [...]

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