A Year Ago This Week. . .

One year ago this week, Aaron and I were in Seattle seeing the perinatologists and pediatric cardiologists for the first time. One year ago, we learned about Matthew’s heart conditions, his Down Syndrome, his possible kidney and brain abnormalities, and his two club feet. One year ago, the doctors told us there was [...]

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2 Weeks after Surgery

Matthew’s surgery was only 2 weeks ago!!  We really thought we would still be in the hospital at this point.  Matthew really couldn’t be doing any better.  He continues to eat well, and he is happy and playful most of the time.  He still has some gas-pain spells every now and then, but they are [...]

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“That look”

It is really wonderful to have Aaron home this week – we are all enjoying the time together.
I went out to do a couple errands this afternoon while the boys were napping, and a funny thing happened while I was at Costco.  An employee saw me shopping and said, “Now, that’s the way to shop [...]

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Back in Yakima

We came back home to Yakima yesterday.  It is so good to be home, but it was a little rough getting here!
Matthew has decided that he does not like his car seat, and he screamed all the way from Spokane to Yakima.  We knew he wasn’t in pain because every time we would stop and [...]

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8 Month Birthday

Today is Matthew’s 8-month Birthday!
He continues to do remarkably well, still less than a week after surgery.  He spent the day playing, smiling, and wiggling.  We’re not supposed to let him lay on his tummy yet, but it’s going to be difficult to keep him from rolling over!
His “eating goal” is 30.5 oz/day, and the [...]

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Some Pictures

We are really enjoying being out of the hospital.  Matthew slept great last night – he was so grateful to finally have some uninterrupted sleep!  He’s still doing wonderfully well – eating well, getting some peaceful sleep, laughing and playing while he’s awake.
In the hospital the night before surgery:

Last night right after we got home [...]

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Home

Just a quick post – I’m tired and heading to bed.
We are out of the hospital, and very much enjoying having our entire family under one roof.  We were released around 6:15pm this evening.  Matthew is doing well, and seems to be very happy to be out of the hospital.  He really looks great – [...]

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Going Home

Matthew is going to be discharged from the hospital today.  He continues to do very well, and they have no reason to keep him here!
His heart rate was a little on the slow side, and his heart sounds were quiter than normal, so he had another echocardiogram today, just to make sure everything was o.k. [...]

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Mr. Hungry Pants

We were mentally prepared for another nasogastric tube or even a gastric feeding tube when we came to the hospital for this surgery. He has never been a good eater and we were told that it often takes a child a while to get his appetite back after heart surgery. We have been [...]

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Mother’s Day

Matthew is doing really well.  He had a great afternoon yesterday – feeling good, eating really well, and enjoying some visits from friends and family.
He did the strangest thing yesterday, though – something that I can only remember him doing a few times in his lifetime, and every time it has caught me off-guard and [...]

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